My rheumatologist just confirmed that my Raynaud’s is primary


Hey everyone. My rheumatologist just confirmed that my Raynaud’s is primary. In the one hand, this is good news, in the other it implies the search for answers goes on. Today I had another severe case of what I call “minus fever” – a body temperature of 35°C (usually 36.8), dizziness, exhaustion. Does anyone else have this? Second question: Is there anyone here with narcolepsy? I was wondering whether that could be the missing link (tired -> cold, forever really tired -> forever really cold).

Chris 3 years 0 Answers 326 views 0

Answers ( No )

  1. I'm so sorry Chris. I know those unanswered questions. I have it too, but then I get extremely hot and red hands, but also low temp where it was normal for years. I have no answers either, yet. I also have FMS and CFS so always cold and always tired except for the hot flashes and then freezing cold. No fun!

  2. My temperature also drops from 97.6F to 95 which is equal to your 35. I too have primary.

  3. I have Raynauds, CFS, fibromyalgia, low body temp, hypothyroidism, low blood pressure, fatigue. Get very lightheaded at times and purposely eat more salt. Not sure about narcolepsy. I am always sleepy. Also somewhat hypoglycemic. Eat often!

  4. Wow Peg! You sound like me. I have all that except for hypothyroidism unless I do have it, but the numbers are in the normal range and I don't have narcolepsy. My BP was surprisingly higher a few weeks ago when taken, but been very low for the past 4 or 5 years.

  5. My temp is always 35 or 36 and I'm totally freezing all day.

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