Anyone been diagnosed with lupus?
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Anyone been diagnosed with lupus? Feel like I should talk to my doctor of this as possibility just in case, is it easy to diagnose or do you need to be showing varying symptoms in order for a diagnosis to occur?
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Raynaud's Disease 2 years 0 Answers 256 views 0
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I have systemic lupus (SLE) and it is incredibly difficult to diagnose. There is no single test to diagnose it. There are a number of symptoms and blood tests that can combine to support a diagnosis. The symptoms are monitored over a long time. It takes years to diagnose in most cases. I would encourage you to absolutely talk to your dr about exploring it as a possibility if you think you have it…the sooner the better. I'm here if you need help or have questions from a patients perspective, as I am not a dr lol.
Don't have Lupus but I am a nurse and exactly what the above comment says- there are many blood tests— usually.. and I say this bc majority of the time… lupus will have a positive ANA
I have Lupus too and agree with Bonnie MacLeod, it's not an easy diagnosis usually. I had severe Raynaud's for about 2 years before I started exhibiting signs of Lupus. Lucky (ha) for me, my Lupus signs hit hard and fast and my tests hit all the right markers so they felt they could make a diagnosis pretty quickly. There is no one test for Lupus, just a whole bunch of others that work in a process of elimination style for the doctor. Definitely talk to your doctor about it as Raynaud's can be the beginning of other auto-immune issues. Just out of curiosity, what kind of symptoms are you having?
I'm not having any super specific symptoms-I've had raynaud's for just over 10 years now. My aunt also has it and says she gets tested for lupus every year. I have been very fatigued in the past although not sure if cause of iron levels. Also know it can effect immune system. So just trying to be cautious. I did have blood work done when I was diagnosed with raynauds but not sure what for
I was tested for lupus to see if that's what was causing my raynauds along with a bunch of other things. I tested negative for everything I just have primary raynauds
Good friend of mine has the Raynauds, Lupus, Fibromyaliga, also has a pace maker keeping her blood flow systematic. She does have the severe discoloration that we all share here in photos, but the white hands.
My grandmother had lupus and Raynaud's. I was diagnosed with Raynaud's a few months ago and made sure I had blood work for numerous things to include lupus.